Background and Importance Hereditary angioedema (HAE) is a rare, hereditary disease with a negative impact on the quality of life of patients. The increase in the knowledge of HAE and the appearance of new treatments in recent years have contributed to modifying the course of this disease. In this scenario, hospital pharmacists have acquired a more significant role.
Aim and Objectives Identify and promote initiatives to improve the management of patients with HAE by Hospital Pharmacy and evaluate the importance of care coordination for a multidisciplinary approach to patients with HAE.
Material and Methods Initiatives to improve the care of patients with HAE were identified, evaluated and prioritised by a multidisciplinary panel of experts (a group of hospital pharmacists, one allergist and one nurse/HAE patient). The initiatives were grouped into seven key areas of activity: evaluation and selection of medicines; dispensation and telepharmacy; pharmacokinetic monitoring and telemedicine; care coordination; patient health education; research, education and training. Subsequently, the initiatives were prioritised based on their impact on improving patient care and on the feasibility of their implementation (scale of 1-5).
Results Twenty-eight initiatives were identified and grouped in seven work areas. After the prioritisation of the initiatives, the experts identified five priority initiatives for Hospital Pharmacy:
- Evaluation and selection of medicines:
Incorporate the patient's perspective and opinion in HAE treatment decision-making processes using PROs (Patient Reported Outcomes) and PREMs (Patient Reported Experience Measures).
Participate in multidisciplinary meetings for the evaluation and selection of drugs for HAE.
- Care coordination:
Develop a guideline of recommendations for the coordination of the healthcare professionals responsible for the management of patients with HAE.
- Patient health education:
Promote the use of telepharmacy tools for patient education and information as a complement to face-to-face care.
Conclusion and Relevance Five priority initiatives are proposed for the management of patients with HAE, highlighting the importance of care coordination to improve the multidisciplinary approach of these patients. From this study, specific actions have been identified that could improve the approach to patients with HEA by hospital pharmacists. Thus, these professionals will be able to promote potentially implementable initiatives that could have a real impact on patients’ lives.
Conflict of Interest No conflict of interest
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